“I don’t think I will ever forget that day,” Matt told Barcroft TV. “It was as if the whole world had ended. Life was not how I wanted it. I just shut down completely.” Indeed, his and Jodi’s initial feeling on the twins’ diagnosis was one of grief. In fact, they knew nothing of what having Down syndrome meant.
Writing in a blog for learning disabilities charity Mencap, Jodi said, “We had so many questions. Would the girls walk? Would they talk? We knew nothing about Down syndrome and left the hospital with no answers, no information, just fear and dread.”
At home, having Googled “Down syndrome” to find out where they stood, Jodi was blindsided by medical jargon. She did, however, understand the potential health complications and demanded doctors perform tests so that she and Matt knew exactly what they were dealing with. Only then could they start mapping out a future.
Following a series of tests, it transpired that Abigail was deaf, and Isobel had a small hole in her heart. What’s more, each girl has an underactive thyroid, meaning that they are unable to produce a sufficient level of certain hormones. This condition can lead to feeling tired, weight gain, depression and a sensitivity to coldness.
But any fears the twins’ parents had wouldn’t last. “When the doctor took us to one side to give us the results, he said he was sorry that Abigail and Isobel had Down’s syndrome,” Jodi told Barcroft TV. “To this day I’ll never know what he was sorry for.”